LITTLE Billy Kiely from Charleville, who suffers from the rare Hunters syndrome, has been named Child Hero of the Year.

Billy Kiely, BT Child Hero of the Year at the Boots maternity & infant Awards in the Royal Marine Hotel, Dun Laoghaire yesterday. Pictured with Billy is his mum , Christine Shanahan and dad, Will Kiely.
Billy, aged 11, was nominated by his mum Christine Shanahan for the Boots Maternity and Infant Awards.
Hunters syndrome is a rare progressive disease that causes painful joints, heart problems, and enlarged liver.
His mum Christine said: “Billy is a superhero and the bravest boy I know. I may be a little biased, but everyone who knows Billy is blown away by his courage, his constant smile and infectious laugh.
“Even though every day is a real battle for him he never lets the pain get to him and always manages to put a smile on everyone’s face.”
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